Useful websites
Addison's Disease Self-Help Group
Conditions: Addison's disease
Web: www.addisons.org.uk
ALDLIFE
Conditions: Adrenoleukodystrophy and adrenomyeloneuropathy
Phone: 0208 473 7493
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
Web: www.aldlife.org
Androgen Insensitivity Syndrome Support Group
Conditions: Complete and partial androgen insensitivity syndrome and related conditions (e.g. Swyer’s syndrome, 5 alpha-reductase deficiency, Mayer-Rokitansky-Kuster-Hauser (MRKH) syndrome)
Web: www.aissg.org
Anorchidism Support Group
Conditions: Anorchidism
Helpline: 01708 372597
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
Web: www.asg4u.org
Association for Multiple Endocrine Neoplasia Disorders
Conditions: Multiple endocrine neoplasia disorders and associated endocrine growths.
Phone: 01892 516076
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
Web: www.amend.org.uk
British Thyroid Foundation
Conditions: Disorders of the thyroid gland
Phone: 01423 709707
Email: Via form on website
Web: www.btf-thyroid.org
Butterfly Thyroid Cancer Trust
Conditions: Thyroid cancer
Phone: 01207 545469
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
Web: www.butterfly.org.uk
Child Growth Foundation
Conditions: Growth related conditions including Turner syndrome, growth hormone deficiency and premature sexual maturity
Phone: 0208 995 0257
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
Web: www.childgrowthfoundation.org
CLIMB (Children Living with Inherited Metabolic Conditions)
Conditions: Inherited metabolic diseases
Phone: 0800 652 3181
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
Web: www.climb.org.uk
Living with CAH – Congenital Adrenal Hyperplasia Support Group
Conditions: Congenital Adrenal Hyperplasia
Phone: 01525 717536
Email: Via form on website
Daisy Network
Conditions: Premature menopause
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
Diabetes UK
Conditions: Diabetes mellitus
Phone: 0845 120 2960
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
Web: www.diabetes.org.uk
dsdfamilies
Conditions: Disorders of sex development
Web: www.dsdfamilies.org
FIPA Patients
Conditions: Familial isolated pituitary adenoma
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
Web: www.geneticalliance.org.uk
The Gender Trust
Conditions: Gender identity
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
Genetic Alliance UK
Conditions: All genetic disorders
Web: www.geneticalliance.org.uk
Hypoparathyroidism UK
Conditions: Hypoparathyroidism and other parathyroid conditions
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
Web: http://hypopara.org.uk/home.php
Infertility Network UK
Conditions: All conditions related to male and female fertility
Phone: 0800 008 7464
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
Web: www.infertilitynetworkuk.com
Kallman Syndrome Organisation
Conditions: Kallman's syndrome
Email: Via form on website
Web: www.kallmanns.org
Klinefelter's Organisation
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
Klinefelter's Syndrome Association
Conditions: Klinefelter's syndrome
Phone: 0845 230 0047
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
Web: www.ksa-uk.co.uk
Men's Health Forum
Conditions: General information on male health
Web: www.menshealthforum.org.uk
National Association for Premenstrual Syndrome (NAPS)
Conditions: Premenstrual syndrome
Phone: 0844 815 7311
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
Web: www.pms.org.uk
National Osteoporosis Society
Conditions: Osteoporosis
Phone: 0845 450 0230
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
Web: www.nos.org.uk
NET Patient Foundation
Conditions: Neuroendocrine tumours
Phone: 0800 434 6476
Email: Via form on website
Web: www.netpatientfoundation.org
Paget's Association
Conditions: Paget's syndrome
Web: www.paget.org.uk
Pituitary Foundation
Conditions: Disorders of the pituitary gland
Phone: 0845 450 0375
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
Web: www.pituitary.org.uk
Prader-Willi Syndrome Association UK
Conditions: Prader-Willi syndrome
Phone: 01332 365 676
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
Web: www.pwsa.co.uk
Restricted Growth Association
Conditions: Conditions which cause restricted growth
Phone: 0300 111 1970
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
Web: www.restrictedgrowth.co.uk
Sexual Advice Association
Conditions: Male and female sexual disorders
Phone: 020 7486 7262
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
Web: http://sexualadviceassociation.co.uk/
Thyroid Eye Disease Charitable Trust
Phone: 0844 800 8133
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
Web: http://tedct.org.uk/
Turner Syndrome Support Society
Conditions: Turner syndrome
Phone: 0300 111 7520
Email: Via form on website
Web: http://tss.org.uk/
Unique
Conditions: Conditions caused by rare chromosome disorders
Phone: 01883 330766
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
Web: http://www.rarechromo.org/html/home.asp
Verity (PCOS)
Conditions: Polycystic ovary syndrome
Weight Concern
Conditions: Obesity
Women's Health Concern
Conditions: General information on female health
Web: www.womens-health-concern.org
You & Your Hormones
Conditions: General information on endocrine conditions
