Work and MS
How can work be affected by Multiple Sclerosis (MS)?
MS can lead to challenges in the workplace due to its unpredictable nature and possible physical and cognitive symptoms. Different jobs come with different problems, and some jobs are quite challenging for people with MS. Here are some common work difficulties individuals with MS may face:
Fatigue - MS fatigue can be debilitating and is the most common reason why people with MS stop work. Work can be tiring, and the effort it takes can build up quickly. This can make it hard to keep up with everything you need to do. Work-life balance can quickly be lost and sometimes people spend all their down time recovering their energy in order to complete their work.
Mobility and physical difficulties – these difficulties will include problems with balance, walking and things that involve using your fingers and hands carefully (dexterity skills). This can make it a challenge to perform certain job tasks or get around the workplace.
Cognitive impairment - cognitive problems, such as memory issues, difficulty concentrating, or slower thinking can affect how well you do your job, especially if your work involves making decisions or solving problems.
Visual disturbances - jobs that involve reading, using a computer, or detailed visual tasks can be harder if MS affects your eyesight.
Bladder and bowel issues - bladder and bowel problems can mean frequent toilet breaks are needed and this can prove challenging in certain work roles and environments.
Temperature sensitivities – heat or cold can make MS symptoms worse. Work environments where the temperature isn't controlled can be difficult for some people with MS.
Stress - trying to manage MS and complete all work duties can create a lot of stress, especially if you are worrying about how it might affect your finances. Stress is known to make MS symptoms.
It is important to address work issues before they reach crisis point.
Don't rush Into a decision
If you have just been diagnosed with MS, had a relapse, or are experiencing new symptoms, it is important not to rush into a decision regarding work. Any decisions you make at this time, such as whether to give up work or tell your employer, may not be the right ones for you in the long term.
Instead, take some time to think things through and get used to what's happening. You may find it helps to talk through your options with someone you trust, like a family member, friend, or health care professional.
Please see the link below for some initial advice regarding work and reasonable adjustments.
https://www.mssociety.org.uk/care-and-support/everyday-living/working-and-ms/work-ms-and-you
The MS Occupational Therapists that work within the Dorset MS service can provide expert advice and support regarding work.
What work support do the MS Occupational Therapists offer?
Helping you stay in employment and working in a way that is manageable and sustainable whilst meeting your work demands and maintaining good health.
This can include:
- Writing letters of support recommending reasonable adjustments
- Educating employers about your condition or needs
- Work-based visits and general advice on things like reasonable adjustments or equipment
- Signposting to schemes such as access to work
- Advice on altered work hours and possible re-deployment
- Advice when considering alternative employment
If after implementing reasonable adjustments work continues to be detrimental to your health and wellbeing, you may want to consider the option of ill-health retirement or leaving work. This is a very individual decision and would require careful consideration. The MS Occupational Therapists can offer support through this process.
Disclosure
Disclosing your diagnosis is a personal decision. Legally you are not obliged to disclose your diagnosis, although there are some exceptions.
Legally you must disclose if you:
- Are in the armed forces
- Drive for a living such as HGV or taxi driver
- Your MS may affect yours or others' health and safety at work
Benefits of Disclosure
The Equality Act 2010 states that your employer has a legal obligation to consider reasonable adjustments to your work role. Reasonable adjustments can be anything that assists you to perform your job effectively. The law says employers must consider reasonable adjustments, but it doesn't give a fixed definition. Telling your employer about your MS can help start an open conversation about what support you might need at work. An employer can not make reasonable adjustments if they are unaware of your diagnosis.
Generally, from our experience in Dorset, in most circumstances, it is better to have this open and honest communication before problems arise.
Reasonable Adjustments - Talking with your employer can help you find ways to manage your energy, take regular breaks, adjust your tasks if needed, and explore helpful tools or equipment for things like movement, vision, or cognition (thinking processes). It also allows the MS OT to support you in asking for more suitable work conditions, such as disabled parking space. Sharing your needs can help create a more understanding and supportive workplace for everyone.
Legally Protected - The Equality Act 2010 prohibits employers discriminating against people with MS in areas of recruitment, promotion, and dismissal. You are entitled to Statutory Sick Pay (SSP) if you are unable to work due to your MS. You also have access to the Access to Work Scheme which helps provide practical support and can include funding for specialised equipment, support workers and adaptations to the workplace.
Confidentiality - Employers are legally required to keep medical conditions, including MS confidential. Information about your health should only be shared with people who need to know and make necessary adjustments.
Other useful contacts
Disability Law Service: Has an MS specific advisor who can support you with any queries regarding potential discrimination:
Tel: 0207 791 9800
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
Access to Work Scheme: This is a government run scheme to help people with a disability to stay in work. You can make a self-referral online at:
https://www.gov.uk/access-to-work
ACAS: Works with both employers and employees offering impartial advice to resolve problems and/or conflict in the workplace:
Tel: 0300 123 1100
https://www.acas.org.uk/advice
Below are two very useful guides for you and your employer regarding work:
Work and MS an employees guide | Multiple Sclerosis Society UK
MS in the workplace: an employer's guide (booklet) | MS Society
